A blog to chronicle raising our daughter with Down syndrome.
Creed of Babies with Down Syndrome
My face may be different, but my feelings the same. I laugh and I cry and take pride in my gains. I was sent here among you to teach and to love as God in the heavens looks down from above. To Him I'm no different, His love knows no bounds; It's those here among you, in cities and towns that judge me by standards that man has imparted, but this family I've choosen will help me get started. For I'm one of the children, so special so few, that came here to learn the same lessons as you. That love is acceptance, it must come from the heart; we all have the same purpose, though not the same start. The Lord gave me life to live and embrace, and I'll do it as you do, but at my own pace. -Unknown
Haven't posted in two months! What a slacker! With Christmas, Abbi's Bday coming up and two weddings it has been a little crazy. All here is well. Abbi is doing great. However since she is getting a little older, we are having sleeping issues. It seems as is she takes a nap during the day of any duration she doesn't want to sleep until 11pm or so. I am a person who is ready for bed around 9:30pm so this is greatly affectly my sleep pattern. She has also decided to let us know when she doesn't like something which becomes very interesting during meal times. Gone are the days of my sweet baby who ate whatever I put in front of her with a smile. Now we pass by Mc D's and she yells... French Fry!!! It actually sounds a little more like Fr Fiii. But it is a start.
Her evals thru the school system are off to a good start. We are only asking for OT and Speech. Don't need preschool services when I have my mom. She does such a great job with Abbi. We are going to start her in a small preschool in the fall for a few hours a day a few days a week. Nerve wrecking but it has to happen sometime I know.
She has also decided that she doesn't like people talking on microphones or loud clapping noises. We tried Sesame Street Live this year and we lasted about 5 minutes before she was screaming and climbing me like a ladder. We are told this is a phase and will pass. Oh how I hope so!! Anyone else out there have any advice on this new thing of being scared of clapping and microphones???