A blog to chronicle raising our daughter with Down syndrome.
Creed of Babies with Down Syndrome
My face may be different, but my feelings the same. I laugh and I cry and take pride in my gains. I was sent here among you to teach and to love as God in the heavens looks down from above. To Him I'm no different, His love knows no bounds; It's those here among you, in cities and towns that judge me by standards that man has imparted, but this family I've choosen will help me get started. For I'm one of the children, so special so few, that came here to learn the same lessons as you. That love is acceptance, it must come from the heart; we all have the same purpose, though not the same start. The Lord gave me life to live and embrace, and I'll do it as you do, but at my own pace. -Unknown
Tonight I saw Abbi get scared for the first time. It was actually one of her IFSP goals to be "scared" of something unfamiliar. Usually she isn't scared of anything. Tonight at the end of her Elmo video there was a puppet with wild orange hair against a black screen that was singing a song. I looked up from the computer to see her running toward me with open arms and the biggest "poochy" lip I had ever seen. She climbed up in my lap and buried her head in my chest. Then she would look back at the TV to see if it was gone. I was quite amazed as I had never seen her scared before. I was actually happy in a small way because that meant she had developed a new emotion! I guess other parents don't feel this way when their child shows they are scared, but for me it was a cause for celebration. Yeah for normal emotions!!!
Well we made it back! Although there was a short while where I wasn't sure we were both going to make it back. Junior almost had a heat stroke we think. It happened while we were snorkeling. Gladly now he seems to be feeling better. We loved the Keys and plan to return someday. There were several things that we wanted to do but didn't have time to do. Two days is just not enough time!
Abbi was very glad we were home! She just hugged us! It was very sweet to be missed finally. Before we would go away and it was as if she never even knew we were gone. Tonight she just wanted to play ball and even went and got the playdough out. She has never done that before. I am teaching her how to use a little rolling pin to roll it out. We had only worked on it once but when I gave her the pin tonight she knew exactly what to do! We also worked on the computer. The Sesame Street website is great! She loves the Elmo Keyboard game and the peek-a-boo one also.
Two weeks until school is back in session. I hope to make the most of each day that we have left!!